从魏则西到徐婷悲剧:晚期肿瘤治疗,请多一些理性

2016-09-12 天津市泰达医院李青大夫 医学论坛网

据《新京报》报道,曾出演过《老爸回家》、《把爱带回家》等电视剧的90后女演员徐婷,因患淋巴瘤于2016年9月7日

据《新京报》报道,曾出演过《老爸回家》、《把爱带回家》等电视剧的90后女演员徐婷,因患淋巴瘤于2016年9月7日在北京304医院去世。徐婷出演过多部电视剧,却很少有人记得她剧中的角色。而不幸的是,她因罹患“淋巴癌”,在生命的最后时刻,却被别人记住。

今年春节,她发现颈部淋巴结肿大,南京的一家医院初步诊断为恶性肿瘤。开始她不相信,不过随着淋巴结越来越大,她接受了恶性肿瘤的诊断,但拒绝化疗,而且不想进一步检查以确诊肿瘤的病理类型。根据报道,她不顾家人的劝告,执意选择失败案例相对更多的中医疗法来治疗。

接下来,喝中药、背部刺血拔火罐、腹部扎针、十指放血……但病情不但没有好转,反而身体备受摧残。

7月9日,北京301医院和北京肿瘤医院两家医院明确诊断为恶性淋巴瘤。这个时刻,她似乎才接受了现实。但8月份,她的家人仍去山东找了一位老中医。原报道称,最后把徐婷送进医院的,是8月中旬的一次呼吸衰竭。医生说,中药已经喝到呼吸衰竭了,必须化疗,如果不化疗,会有生命危险。

在别无选择的情况下,她开始了第一次化疗。此时她开始后悔,化疗开始的时间太晚了。但是,世界上哪有后悔药?最终她因感染严重、呼吸衰竭而去世。一个未来之星就这样过早陨落了。

说到这里,我突然想起了5个月前刚刚去世的魏则西。

魏则西和徐婷二人都因恶性肿瘤去世,一个年方22岁,一个年仅26岁。魏则西患的是“滑膜肉瘤”,徐婷患的是“淋巴肉瘤”,都属于“肉瘤”。魏则西事件之所以成为热点事件,是因为他被“高级”骗子骗光了家里的所有积蓄,最后人财两空;而徐婷事件被人们热议的是,徐选择了错误的治疗方式主动被江湖骗子欺骗,为了治病备受折磨,最后痛苦的离世。两个悲剧都有骗子的存在,只不过,一个还在江湖,一个穿上了庄重的外衣。

一、什么是肉瘤?肉瘤和癌症有何不同?

“肉瘤”到底是什么东东,竟在很短时间内夺走了两个优秀青年的性命。

医学上,将发生于上皮细胞的恶性肿瘤称为“癌”,将发生于非上皮细胞的恶性肿瘤成为“肉瘤”,我们常说的“淋巴癌”、“骨癌”、“血癌”等恶性肿瘤,专业名称不应该叫“癌”,而应该叫“淋巴肉瘤”、“骨肉瘤”、“白血病”。肉瘤多见于青年人,和癌症相比,肉瘤更凶险,治疗效果更差,甚至一些肉瘤目前根本无药可用。如果非要用癌症去命名的话,那肉瘤被成为“超级癌症”。

二、得了肿瘤,就一定要对瘤细胞“赶尽杀绝”吗?

许多患者,发现肿瘤后便和肿瘤势不两立,坚决要求手术切除,而且转移到哪里切到哪里。最终,原发肿瘤被切除了,转移瘤也被切除了,但一些脏器的功能也丧失了,生命质量大大下降。如此治疗是否能延长生存期并不能肯定,但能肯定的是,剩下的日子是在手术后的痛苦中度过。

还有的患者,将瘤细胞等同于致病细菌,只要在体内存在,就一定要消灭掉。于是,大量的使用化疗药,不惜脱发、呕吐、不能进食,肝损害,肾衰竭。杀敌三千,自损八百,也许肿瘤细胞被消灭了,但身体受到的伤害也很大,最后的时光不得不在痛苦中度过。

也许有人说,生命如此珍贵,宁可痛苦,也要活着。那是一个非肿瘤者的思维,如果深度接触一个晚期肿瘤患者的痛苦,也许就不再这样想。许多恶性肿瘤患者晚期真的是生不如死,一些国家针对这些患者出台安乐死的法律绝不是异想天开。

1999年,日本的一个学者写了一本书《患者,请不要硬和癌症作斗争》,告诫肿瘤患者,与癌症硬性斗争,带来的只能是残酷的治疗和痛苦。为了无憾地活着,就要学会带瘤生存。积极的心态,愉快的心情,高质量的生命,比痛苦的存活更可取。书中大部分观点现在已经被许多人所接受。

三、得了肿瘤,是不是就放弃治疗?

当然不是。恶性肿瘤早发现、早诊断、早治疗,肯定能获得较好的治疗效果,关键是一个“早”字。个别肿瘤,早期治疗甚至可以完全治愈。

许多患者,出现了症状才去就医,这个时候,肿瘤往往已经中晚期了,治疗效果当然不好,甚至部分患者已经没有积极治疗的的必要了。

每个人的身体状况不同,所患的肿瘤不同、分期不同、病理类型不同,治疗方案肯定也不同。不管怎样,每个学科都有自己的诊疗指南,专业医生会根据指南,结合病人的基本情况,拿出一套个性化的治疗方案。这个时候,请患者一定要遵守、尊重专科医生给出的方案。

但是,临床上常见的情况是,当晚期患者被告知不能手术、不能化疗、不能放疗的时候,患者及家人会误认为“难道就没治了?”,“难道就等死吗?”,然后开始失去理性。于是查烂百度搜索,遍寻世间偏方,只要说有一丁点疗效,哪怕价格昂贵,都敢卖车卖房去使用。此时,各种骗子开始登场了。

不管是医生还是患者,晚期肿瘤在选择治疗前一定要认真思考,是“治病”,还是“救人”,是面对疾病,还是面对病人。瘤细胞由正常细胞变异而来,可无论怎么变异,还有正常细胞的特征。任何化疗药在消灭瘤细胞的同时,都会伤及无辜。如果只是为了治病,那就来吧,尽可使用各种办法;如果是为了救人,那就应该考虑每一种方案的利弊,身体是否能够承受,是否带来新的痛苦,治疗后生命质量是否大幅下降等。

现代医学也许太理性,有时候给人以“冷冰冰”的感觉。而江湖游医无知者无畏,各种疑难杂症都敢治疗。他们将那些根本无用甚至有害的杂耍包装成有神奇治疗作用的疗法,这非常吸引感到“无助”的晚期肿瘤患者。

其实,专业医生说不能积极治疗了,并不意味着不能治疗了。首先应该认识到,晚期肿瘤不再积极治疗,不是医生对患者的病情不积极,而是病情到了这个程度,即使积极治疗也不可能延长生存,甚至会加重痛苦;其次,药物止痛、加强营养、对症处理、治疗焦虑、心理支持、心灵安慰不都是治疗吗?这些综合措施如果做得好,患者也许很安详的度过最后的时光。

魏则西在接受北京武警二院“生物疗法”治疗之前,已经辗转于西安、北京、天津的肿瘤医院,这些正规医院已经明确告诉他滑膜肉瘤目前没有更好的药物可用,让他接受现实。但小魏似乎不甘心,而老魏更是不放弃,于是抱着侥幸的心理试用各种办法,最后被莆田系所骗。假如他相信那几家正规肿瘤医院的治疗建议,生命的结局虽然相同,但可能为年迈的父母留下部分生计。

徐婷在病情确诊后,放弃了医学专业公认的化疗方案,而选用了拔火罐、刮痧、针灸放血等民间毫无根据、甚至被禁止的传统疗法,最后身体受尽折磨不说,还因采用这些疗法延误治疗,加快死亡。

作为医生,我非常同情徐婷,也非常同情魏则西。我绝没有批评之意,我只是理性的分析他们的悲剧,避免这些悲剧在别人身上重演。

由于信息不对称,患者对治疗的选择总是居于被动地位。对患者受骗,不能一味的批评患者。不管是高级骗子,还是低级骗子,能够纵横江湖这么多年,而且现在仍然大行其道的原因,应该说是监管部门失职了。

最后,再次提醒,医疗是门科学,晚期恶性肿瘤患者在选择治疗方式时,请多一些科学和理性。

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  3. 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createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=124859, encodeId=49a812485980, content=继续学习, beContent=null, objectType=article, channel=null, level=null, likeNumber=30, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/jW482SpianMayicTRbRZ5RzfPkmqRTH5rHib5mcib8Wb3QdXjhfOK1UubQL2lictjJFdFJ6Lc3cnnCOSWqxXZ4Kk6y5GdzDoy764R/0, createdBy=156e1644785, createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=)]
    2016-09-14 舒心和人

    病急乱投医,感谢分享

    0

  4. 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createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=124859, encodeId=49a812485980, content=继续学习, beContent=null, objectType=article, channel=null, level=null, likeNumber=30, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/jW482SpianMayicTRbRZ5RzfPkmqRTH5rHib5mcib8Wb3QdXjhfOK1UubQL2lictjJFdFJ6Lc3cnnCOSWqxXZ4Kk6y5GdzDoy764R/0, createdBy=156e1644785, createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=)]
    2016-09-14 1dd8a7c5m95(暂无匿称)

    学习了,赞一个!!!

    0

  5. 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  6. 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createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=124859, encodeId=49a812485980, content=继续学习, beContent=null, objectType=article, channel=null, level=null, likeNumber=30, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/jW482SpianMayicTRbRZ5RzfPkmqRTH5rHib5mcib8Wb3QdXjhfOK1UubQL2lictjJFdFJ6Lc3cnnCOSWqxXZ4Kk6y5GdzDoy764R/0, createdBy=156e1644785, createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=)]
    2016-09-13 1dd8a7c5m95(暂无匿称)

    学习了,赞一个!!!

    0

  7. 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createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=124859, encodeId=49a812485980, content=继续学习, beContent=null, objectType=article, channel=null, level=null, likeNumber=30, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/jW482SpianMayicTRbRZ5RzfPkmqRTH5rHib5mcib8Wb3QdXjhfOK1UubQL2lictjJFdFJ6Lc3cnnCOSWqxXZ4Kk6y5GdzDoy764R/0, createdBy=156e1644785, createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=)]
    2016-09-13 doctorJiangchao

    继续关注

    0

  8. 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createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=124859, encodeId=49a812485980, content=继续学习, beContent=null, objectType=article, channel=null, level=null, likeNumber=30, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/jW482SpianMayicTRbRZ5RzfPkmqRTH5rHib5mcib8Wb3QdXjhfOK1UubQL2lictjJFdFJ6Lc3cnnCOSWqxXZ4Kk6y5GdzDoy764R/0, createdBy=156e1644785, createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=)]
    2016-09-13 doctorJiangchao

    继续学习

    0

  9. [GetPortalCommentsPageByObjectIdResponse(id=1709453, encodeId=d58c1e09453c0, content=<a href='/topic/show?id=cf4a598e795' target=_blank style='color:#2F92EE;'>#晚期肿瘤#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=50, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=59877, encryptionId=cf4a598e795, topicName=晚期肿瘤)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=926b31711313, createdName=ms705947299214030, createdTime=Thu Jan 26 15:39:00 CST 2017, time=2017-01-26, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1689689, encodeId=86861689689b2, content=<a href='/topic/show?id=57bf10284661' target=_blank style='color:#2F92EE;'>#魏则西#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=46, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=102846, encryptionId=57bf10284661, topicName=魏则西)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=6a2928842280, createdName=41514496@qq.com, createdTime=Sat Oct 01 03:39:00 CST 2016, time=2016-10-01, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=126565, encodeId=510612656517, content=病急乱投医,感谢分享, beContent=null, objectType=article, channel=null, level=null, likeNumber=1, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=http://cacheapi.medsci.cn/resource/upload/20160907/IMG57D00CF1965701770.jpg, createdBy=565c1948251, createdName=舒心和人, createdTime=Wed Sep 14 12:27:00 CST 2016, time=2016-09-14, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=126440, encodeId=adef12644075, content=学习了,赞一个!!!, beContent=null, objectType=article, channel=null, level=null, likeNumber=60, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/mStl88fu4NfNLvzZhgPxRuUXgacXpPeW0x8Z3Qr9c3I2kTic4ZIpR29iaftYgkjRcbv982icYMtqANBPYBgPnOia6mVtX76qMXuc/0, createdBy=ebe61630855, createdName=1dd8a7c5m95(暂无匿称), createdTime=Wed Sep 14 11:02:00 CST 2016, time=2016-09-14, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1304030, encodeId=7e15130403011, content=<a href='/topic/show?id=c5558298426' target=_blank style='color:#2F92EE;'>#肿瘤治疗#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=35, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=82984, encryptionId=c5558298426, topicName=肿瘤治疗)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=139a316, createdName=wumeihua88, createdTime=Wed Sep 14 00:39:00 CST 2016, time=2016-09-14, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=125209, encodeId=62a11252096a, content=学习了,赞一个!!!, beContent=null, objectType=article, channel=null, level=null, likeNumber=68, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/mStl88fu4NfNLvzZhgPxRuUXgacXpPeW0x8Z3Qr9c3I2kTic4ZIpR29iaftYgkjRcbv982icYMtqANBPYBgPnOia6mVtX76qMXuc/0, createdBy=ebe61630855, createdName=1dd8a7c5m95(暂无匿称), createdTime=Tue Sep 13 13:28:00 CST 2016, time=2016-09-13, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=124870, encodeId=a7e51248e05e, content=继续关注, beContent=null, objectType=article, channel=null, level=null, likeNumber=67, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/jW482SpianMayicTRbRZ5RzfPkmqRTH5rHib5mcib8Wb3QdXjhfOK1UubQL2lictjJFdFJ6Lc3cnnCOSWqxXZ4Kk6y5GdzDoy764R/0, createdBy=156e1644785, createdName=doctorJiangchao, createdTime=Tue Sep 13 11:21:00 CST 2016, time=2016-09-13, status=1, ipAttribution=), 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createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=124859, encodeId=49a812485980, content=继续学习, beContent=null, objectType=article, channel=null, level=null, likeNumber=30, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/jW482SpianMayicTRbRZ5RzfPkmqRTH5rHib5mcib8Wb3QdXjhfOK1UubQL2lictjJFdFJ6Lc3cnnCOSWqxXZ4Kk6y5GdzDoy764R/0, createdBy=156e1644785, createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=)]
    2016-09-13 doctorJiangchao

    继续关注

    0

  10. 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createdAvatar=https://wx.qlogo.cn/mmopen/mStl88fu4NfNLvzZhgPxRuUXgacXpPeW0x8Z3Qr9c3I2kTic4ZIpR29iaftYgkjRcbv982icYMtqANBPYBgPnOia6mVtX76qMXuc/0, createdBy=ebe61630855, createdName=1dd8a7c5m95(暂无匿称), createdTime=Wed Sep 14 11:02:00 CST 2016, time=2016-09-14, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1304030, encodeId=7e15130403011, content=<a href='/topic/show?id=c5558298426' target=_blank style='color:#2F92EE;'>#肿瘤治疗#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=35, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=82984, encryptionId=c5558298426, topicName=肿瘤治疗)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=139a316, createdName=wumeihua88, createdTime=Wed Sep 14 00:39:00 CST 2016, time=2016-09-14, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=125209, encodeId=62a11252096a, content=学习了,赞一个!!!, beContent=null, objectType=article, channel=null, level=null, likeNumber=68, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/mStl88fu4NfNLvzZhgPxRuUXgacXpPeW0x8Z3Qr9c3I2kTic4ZIpR29iaftYgkjRcbv982icYMtqANBPYBgPnOia6mVtX76qMXuc/0, createdBy=ebe61630855, createdName=1dd8a7c5m95(暂无匿称), createdTime=Tue Sep 13 13:28:00 CST 2016, time=2016-09-13, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=124870, encodeId=a7e51248e05e, content=继续关注, beContent=null, objectType=article, channel=null, level=null, likeNumber=67, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/jW482SpianMayicTRbRZ5RzfPkmqRTH5rHib5mcib8Wb3QdXjhfOK1UubQL2lictjJFdFJ6Lc3cnnCOSWqxXZ4Kk6y5GdzDoy764R/0, createdBy=156e1644785, createdName=doctorJiangchao, createdTime=Tue Sep 13 11:21:00 CST 2016, time=2016-09-13, status=1, ipAttribution=), 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createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=124859, encodeId=49a812485980, content=继续学习, beContent=null, objectType=article, channel=null, level=null, likeNumber=30, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/jW482SpianMayicTRbRZ5RzfPkmqRTH5rHib5mcib8Wb3QdXjhfOK1UubQL2lictjJFdFJ6Lc3cnnCOSWqxXZ4Kk6y5GdzDoy764R/0, createdBy=156e1644785, createdName=doctorJiangchao, createdTime=Tue Sep 13 11:18:00 CST 2016, time=2016-09-13, status=1, ipAttribution=)]
    2016-09-13 doctorJiangchao

    继续学习

    0