IJNS:家庭照顾者参与痴呆症患者的护理计划

2021-10-19 小文子 MedSci原创

与家庭照顾者一起制定个体化、全面的计划,并提供指导,可以帮助他们克服不确定性,消除更多阻碍参与提高痴呆症患者生活质量的护理计划.

痴呆症是一种与认知和身体进行性衰退的疾病。因此,它对痴呆症患者、家庭和社区都有很大的影响。痴呆症的严重程度、个性变化和挑战性行为与照顾者负担较高有关,尤其中度至重度痴呆症需要更多的护理和监测。照顾者负担是痴呆症患者入住养老院的主要原因之一。一些家庭照顾者倾向于在患者入住养老院后继续参与护理。家庭照顾者的参与对患者和家庭的福祉产生积极影响。但在实践中如何起作用,以及需要哪些因素来改善?目前的研究仍知之甚少。

发表在International Journal of Nursing Studies杂志的一篇文章探索了Namaste家庭护理计划中家庭照顾者、养老院护理人员和志愿者参与家庭护理的经验。Namaste家庭护理计划,是一项针对养老院痴呆症患者的干预措施,旨在提高其生活质量。家庭计划有利于护理人员和家庭之间的合作,有助于家庭照顾者与患者之间的联系。该研究调查了家庭照顾者对参与活动的偏好,以及影响家庭照顾者参与Namaste家庭护理计划的促进和阻碍因素。

在2017年12月至2018年10月期间,研究人员对参与Namaste家庭护理计划的10家养老院的家庭照顾者(n=10)、志愿者(n=2)和护理人员(n=31)进行半结构式访谈,了解他们在Namaste家庭护理计划中的经历。访谈在实施Namaste家庭护理计划12个月后的4周内进行。

结果显示,家庭照顾者对Namaste家庭护理计划的参与是积极的,尤其与患者间有意义的联系。然而,家庭参与护理计划付诸实践是一项挑战。研究人员确定了促进和阻碍参与的三个主题因素:

(1)家庭照顾者对与患者一起参与行动的偏好(行动):符合自己利益的实际行动被视为促进,而感知缺乏知识和不愿与他人接触是障碍。

(2)家庭照顾者、护理人员和志愿者之间的沟通(沟通):向家庭照顾者提供关于该计划的明确信息可促进参与。而不安全感抑制参与。

(3)家庭照顾者的个人背景(个人情况):感到满足和被欣赏有助于参与。年龄较大、有自己的家庭、工作和复杂的家庭关系是家庭照顾者参与的障碍。

为优化家庭参与,采用以家庭为中心的方法并提供培训和指导非常重要。与家庭照顾者一起制定个体化、全面的计划,并提供指导,可以帮助他们克服不确定性,消除更多阻碍参与提高痴呆症患者生活质量的护理计划。研究人员还建议对护理人员进行培训,以促进与家庭照顾者的沟通。

原文出处:

Petra E.M. Tasseron-Dries, Hanneke J.A. Smaling, et al Family involvement in the Namaste care family program for dementia: A qualitative study on experiences of family, nursing home staff, and volunteers, International Journal of Nursing Studies, 2021,https://doi.org/10.1016/j.ijnurstu.2021.103968.

版权声明:
本网站所有内容来源注明为“梅斯医学”或“MedSci原创”的文字、图片和音视频资料,版权均属于梅斯医学所有。非经授权,任何媒体、网站或个人不得转载,授权转载时须注明来源为“梅斯医学”。其它来源的文章系转载文章,或“梅斯号”自媒体发布的文章,仅系出于传递更多信息之目的,本站仅负责审核内容合规,其内容不代表本站立场,本站不负责内容的准确性和版权。如果存在侵权、或不希望被转载的媒体或个人可与我们联系,我们将立即进行删除处理。
在此留言
评论区 (4)
#插入话题
  1. [GetPortalCommentsPageByObjectIdResponse(id=1705131, encodeId=15571e05131c1, content=<a href='/topic/show?id=4fe76e32199' target=_blank style='color:#2F92EE;'>#照顾者#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=67321, encryptionId=4fe76e32199, topicName=照顾者)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=ddce30934010, createdName=pcw116, createdTime=Mon Jun 06 06:37:13 CST 2022, time=2022-06-06, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=2032596, encodeId=d3e4203259631, content=<a href='/topic/show?id=dfa856009e2' target=_blank style='color:#2F92EE;'>#护理计划#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=39, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=56009, encryptionId=dfa856009e2, topicName=护理计划)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=baf586, createdName=wangbingxhy, createdTime=Wed Sep 07 20:37:13 CST 2022, time=2022-09-07, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1836282, encodeId=2f92183628271, content=<a href='/topic/show?id=4613e1212fc' target=_blank style='color:#2F92EE;'>#痴呆症#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=32, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=71212, encryptionId=4613e1212fc, topicName=痴呆症)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=726030, createdName=Boyinsh, createdTime=Mon Sep 12 23:37:13 CST 2022, time=2022-09-12, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1246313, encodeId=0832124631317, content=老年性痴呆,未来还是希望借助神经电生理吧,也许更为有效!, beContent=null, objectType=article, channel=null, level=null, likeNumber=0, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=f0620, createdName=neuro.Dr, createdTime=Tue Oct 19 19:37:13 CST 2021, time=2021-10-19, status=1, ipAttribution=)]
    2022-06-06 pcw116
  2. [GetPortalCommentsPageByObjectIdResponse(id=1705131, encodeId=15571e05131c1, content=<a href='/topic/show?id=4fe76e32199' target=_blank style='color:#2F92EE;'>#照顾者#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=67321, encryptionId=4fe76e32199, topicName=照顾者)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=ddce30934010, createdName=pcw116, createdTime=Mon Jun 06 06:37:13 CST 2022, time=2022-06-06, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=2032596, encodeId=d3e4203259631, content=<a href='/topic/show?id=dfa856009e2' target=_blank style='color:#2F92EE;'>#护理计划#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=39, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=56009, encryptionId=dfa856009e2, topicName=护理计划)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=baf586, createdName=wangbingxhy, createdTime=Wed Sep 07 20:37:13 CST 2022, time=2022-09-07, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1836282, encodeId=2f92183628271, content=<a href='/topic/show?id=4613e1212fc' target=_blank style='color:#2F92EE;'>#痴呆症#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=32, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=71212, encryptionId=4613e1212fc, topicName=痴呆症)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=726030, createdName=Boyinsh, createdTime=Mon Sep 12 23:37:13 CST 2022, time=2022-09-12, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1246313, encodeId=0832124631317, content=老年性痴呆,未来还是希望借助神经电生理吧,也许更为有效!, beContent=null, objectType=article, channel=null, level=null, likeNumber=0, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=f0620, createdName=neuro.Dr, createdTime=Tue Oct 19 19:37:13 CST 2021, time=2021-10-19, status=1, ipAttribution=)]
  3. [GetPortalCommentsPageByObjectIdResponse(id=1705131, encodeId=15571e05131c1, content=<a href='/topic/show?id=4fe76e32199' target=_blank style='color:#2F92EE;'>#照顾者#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=67321, encryptionId=4fe76e32199, topicName=照顾者)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=ddce30934010, createdName=pcw116, createdTime=Mon Jun 06 06:37:13 CST 2022, time=2022-06-06, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=2032596, encodeId=d3e4203259631, content=<a href='/topic/show?id=dfa856009e2' target=_blank style='color:#2F92EE;'>#护理计划#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=39, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=56009, encryptionId=dfa856009e2, topicName=护理计划)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=baf586, createdName=wangbingxhy, createdTime=Wed Sep 07 20:37:13 CST 2022, time=2022-09-07, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1836282, encodeId=2f92183628271, content=<a href='/topic/show?id=4613e1212fc' target=_blank style='color:#2F92EE;'>#痴呆症#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=32, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=71212, encryptionId=4613e1212fc, topicName=痴呆症)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=726030, createdName=Boyinsh, createdTime=Mon Sep 12 23:37:13 CST 2022, time=2022-09-12, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1246313, encodeId=0832124631317, content=老年性痴呆,未来还是希望借助神经电生理吧,也许更为有效!, beContent=null, objectType=article, channel=null, level=null, likeNumber=0, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=f0620, createdName=neuro.Dr, createdTime=Tue Oct 19 19:37:13 CST 2021, time=2021-10-19, status=1, ipAttribution=)]
    2022-09-12 Boyinsh
  4. [GetPortalCommentsPageByObjectIdResponse(id=1705131, encodeId=15571e05131c1, content=<a href='/topic/show?id=4fe76e32199' target=_blank style='color:#2F92EE;'>#照顾者#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=67321, encryptionId=4fe76e32199, topicName=照顾者)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=ddce30934010, createdName=pcw116, createdTime=Mon Jun 06 06:37:13 CST 2022, time=2022-06-06, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=2032596, encodeId=d3e4203259631, content=<a href='/topic/show?id=dfa856009e2' target=_blank style='color:#2F92EE;'>#护理计划#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=39, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=56009, encryptionId=dfa856009e2, topicName=护理计划)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=baf586, createdName=wangbingxhy, createdTime=Wed Sep 07 20:37:13 CST 2022, time=2022-09-07, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1836282, encodeId=2f92183628271, content=<a href='/topic/show?id=4613e1212fc' target=_blank style='color:#2F92EE;'>#痴呆症#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=32, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=71212, encryptionId=4613e1212fc, topicName=痴呆症)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=726030, createdName=Boyinsh, createdTime=Mon Sep 12 23:37:13 CST 2022, time=2022-09-12, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1246313, encodeId=0832124631317, content=老年性痴呆,未来还是希望借助神经电生理吧,也许更为有效!, beContent=null, objectType=article, channel=null, level=null, likeNumber=0, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=f0620, createdName=neuro.Dr, createdTime=Tue Oct 19 19:37:13 CST 2021, time=2021-10-19, status=1, ipAttribution=)]
    2021-10-19 neuro.Dr

    老年性痴呆,未来还是希望借助神经电生理吧,也许更为有效!

    0

相关资讯

Alzheimer's & Dementia:痴呆症患者和非正式护理人员更希望得到什么帮助:一个混合方法的研究 

排名活动和讨论结果表明,痴呆症患者更喜欢家庭护理、日常活动的帮助和社会活动,而非正式护理人员更喜欢社会活动、关于痴呆症的信息、医疗系统的导航和情感支持。

BMJ:从事神经刺激性工作的人与降低老年痴呆症的风险有关

从事认知刺激性工作的人比从事非刺激性工作的人在老年时患痴呆症的风险更低。

JAMA子刊:FDA为什么会加速批准阿尔茨海默病新药Aducanumab?

这是20年来第一个治疗阿尔茨海默病的新药物。

IJNS:对痴呆症患者赋权

赋权是一个动态过程,通过痴呆症患者与环境之间的相互作用而发生。

Hypertension:高血压诊断年龄与脑结构和痴呆症之间的关联

在青年或中年诊断出高血压,而非老年,与较小的脑容量和痴呆风险增加相关。

世界阿尔茨海默病日|无法治愈的疾病,该如何预防?

​失智症又名认知障碍症、认知症、痴呆症,包括常见的老年痴呆即阿尔茨海默病,这是一种高致残率、高死亡率的神经退行性疾病,随着病情发展,患者失忆、失智、失能,且伴有精神行为异常,病情可能持续8-20年